“If ever there is tomorrow when we're not together.. there is something you must always remember. You are braver than you believe, stronger than you seem, and smarter than you think. But the most important thing is, even if we're apart.. I'll always be with you.”
~A.A. Milne, from "Winnie the Pooh"

Monday, January 30, 2012

Raising Awareness for Lily

Sara is a friend of mine, one that I am proud and honored to have. 

Somehow, several months ago, while she was pregnant, she stumbled across my blog. She was going through an especially hard time with her pregnancy back then and was filled with worry for what the future might hold for her baby. Her doctors had determined that something wasn't quite right, but had been unable to determine what exactly it was. 
When I went to her blog, following a comment she had made on mine, I found that she had left one visit with a list of things that might be wrong with her precious wee one. She was told the very thing that no parent ever wants to hear...that her baby might not survive.
I had written a post on Liddy's 8 month birthday about wishing I could tell the me of 8 months prior to not worry, everything was going to be fine, and had told Sara herself that I was holding on to the promise that when her little girl was 8 months old, she would look back and realize her worry had all been for nothing as well (and.... I would get to tell her "I told you so.")
Meet Lily.

Being right has never been more beautiful.
Lily is a miracle.

Lily has Turner's Syndrome. She will always be a tiny little thing and could have other issues that present themselves as time goes on. But right now, she is healthy. She is here. She is alive,and thriving, in spite of the prognosis that her parents were given before her arrival into this world.
I gotta say that after all the prayers I have said over this precious girl, I sincerely praise God every single time her mama posts new pictures. :)
This month is Turner's Syndrome awareness month. Her mama, my friend, has asked for my help in spreading the word about what Turner's Syndrome is. She will be doing special posts to raise awareness the entire month of February. 
If you're anything like me, you might have never even heard of this before right now. I hadn't before she was born. 
Please go visit Sara (and beautiful Lily) at Sara's blog this month. Learn a little something. Gush over how beautiful Lily is. Support a mom just trying to teach the world a little something about her daughter. 
Behold a miracle. :)
And Sara, time is ticking away.....that 8 month mark will be here in the blink of an eye. I'll be looking for that future post about all the worry being for nothing. XOXOXO


  1. I visited and shared the love. Lily is beautiful!

  2. She is beautiful. Just going to check her blog out now :)

  3. Thank you dear Heidi! You make me cry with your words. Thank you for praying for my sweet Lily. We are half way to those 8 months! Kisses and Hugs from Lily to you and Liddy.

  4. if only we could go back and see it will all be ok! I think there would be less stress and more hope...maybe more celebration and less sadness..Lily is a sweetie! thanks for sharing! smiles


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