“If ever there is tomorrow when we're not together.. there is something you must always remember. You are braver than you believe, stronger than you seem, and smarter than you think. But the most important thing is, even if we're apart.. I'll always be with you.”
~A.A. Milne, from "Winnie the Pooh"

Monday, January 30, 2012

Raising Awareness for Lily

Sara is a friend of mine, one that I am proud and honored to have. 

Somehow, several months ago, while she was pregnant, she stumbled across my blog. She was going through an especially hard time with her pregnancy back then and was filled with worry for what the future might hold for her baby. Her doctors had determined that something wasn't quite right, but had been unable to determine what exactly it was. 
When I went to her blog, following a comment she had made on mine, I found that she had left one visit with a list of things that might be wrong with her precious wee one. She was told the very thing that no parent ever wants to hear...that her baby might not survive.
I had written a post on Liddy's 8 month birthday about wishing I could tell the me of 8 months prior to not worry, everything was going to be fine, and had told Sara herself that I was holding on to the promise that when her little girl was 8 months old, she would look back and realize her worry had all been for nothing as well (and.... I would get to tell her "I told you so.")
Meet Lily.


Being right has never been more beautiful.
Lily is a miracle.

Lily has Turner's Syndrome. She will always be a tiny little thing and could have other issues that present themselves as time goes on. But right now, she is healthy. She is here. She is alive,and thriving, in spite of the prognosis that her parents were given before her arrival into this world.
I gotta say that after all the prayers I have said over this precious girl, I sincerely praise God every single time her mama posts new pictures. :)
This month is Turner's Syndrome awareness month. Her mama, my friend, has asked for my help in spreading the word about what Turner's Syndrome is. She will be doing special posts to raise awareness the entire month of February. 
If you're anything like me, you might have never even heard of this before right now. I hadn't before she was born. 
Please go visit Sara (and beautiful Lily) at Sara's blog this month. Learn a little something. Gush over how beautiful Lily is. Support a mom just trying to teach the world a little something about her daughter. 
Behold a miracle. :)
And Sara, time is ticking away.....that 8 month mark will be here in the blink of an eye. I'll be looking for that future post about all the worry being for nothing. XOXOXO

Friday, January 27, 2012

Strength Through Adversity...And Keeping The Faith

It seems that the more I immerse myself into the DS community, the more I stumble across people who are scared, who are worried, who are hurting in places that they rarely let the rest of the world see. When those tiny glimpses into the pain inside show themselves, I find my own heart filling with tiny fractures, filling with a tiny bit of sadness as well.
You see, I have always hated to see others in pain. Even stories that I read or see on the news have the power to nearly drown me in sorrow and wash my face with tears.
Genuine Empathy. The ability to put yourself in someone else's shoes and genuinely feel the pain of whatever struggle they are going through. The very real wish that you could reach through the TV screen, or the computer screen, or the pages of a newspaper and do anything possible to lighten their load in whatever way is possible, even if all that is available is a willing ear, an open, caring heart, and a hug that says one way or the other it will all be okay.
Something this world could use a whole lot more of, in my opinion.......

This morning, I again caught a glimpse of someone wrapped solidly in their sadness, bearing a load that no one should have to. And as always, I found myself wishing desperately that it was as easy as jumping in the car, or picking up the phone, to let her know that I care, that my heart is broken FOR her, that God has not abandoned her. But it isn't always that easy in this world of far-flung friendships. In my efforts to find the right words to say, God placed on my heart a story.
For those of you who grew up in any type of church setting, or who are church goers now, the story of Job is not a new one to you. It is one that I have probably always known but have not thought of in more years than I can count. And if I am honest, I'd have to say that once again, just like the story of Mary, it's not something that I have considered deeply or in relation to any struggles I have experienced in my own life. Job was, to my childish mind, a character in a story, a man whose thoughts and very real pain I never truly considered.
Job was a rich man, a blessed man. He was also good in deed and in character. He worshiped God and faithfully gave thanks for the many blessings that He had seen fit to give him.
One day, God and Satan were having a little chat and God pointed Job out as a shining example that faith and goodness were not lost, which set the Devil to thinking. Satan told God that the reason that Job was faithful and turned from evil was because of the blessings that God had bestowed upon him, to which God disagreed. I can see in my mind Satan rubbing his hands together in glee as he offered what amounted to a little wager, that God would allow Satan to do his worst, take away everything from Job, and Satan believed that THEN amid the ashes of his former charmed life, Job would curse God. God fervently denied that anything would turn Job from Him, and agreed to allow Satan free rein, as long as he did not cause harm to Job himself.
It started with his livestock....one herd after another stolen, burnt up, dead. Job remained faithful. So Satan set a horrible windstorm upon the land, which destroyed the home of Job's oldest son, killing all of his children in one fell swoop. Job still remained faithful.
Satan returned to God, saying that despite the proof in front of him, he was not convinced of Job's faithfulness. He requested that God allow him to place his hand on Job. God reluctantly agreed with the stipulation that Job could not be killed. Poor Job, who had already lost so much, was struck down with blistering sores.......His wife by this time was urging him to turn from God, yet Job remained steady in the belief that God would care for him..........

I find that this story from thousands of years ago answers many questions that we all seem to have about why bad things happen to good people, while it seems that good things happen to those who are not. I see it a little as God chooses those who He knows will remain faithful to Him, who will continue to see the blessings which He has seen fit to bestow despite the cloudiness of the sorrow in their hearts because He knows that tragedy and heart ache will come together and forge something beautiful out of the ashes of life as we know it.
God doesn't harm us. God doesn't give us troubles. Satan does. And it seems to me a little like God and the Devil chatting about Job; God is bragging on His kids and the Devil is jealous. It stands to reason that the very people God is proudest of are the ones that the Devil pushes the hardest, trying to break them, just like he tried and failed to break Job.

Back when Liddy was in the hospital following her OHS, I wrote this post about the creation of diamonds. In a nutshell, it takes unrelenting pressure and incredible heat to change an ordinary lump of coal into a diamond. This little geological tidbit is something that I hold tightly to when trouble pays me a visit.
The likeness between myself and a lump of coal is not lost on me. I am first a lump of coal, hand picked to become something less than ordinary, something spectacular, a diamond. And I have to believe that Job was as well.
So even though we may never have all the answers and we may never have it within our power to stop the world's pain, we do have it within ourselves to understand that by continuing to praise God through the trials and tribulations, through the seemingly unrelenting rain, through incredible pressure and the Devil's hot breath on our necks, we, too, are becoming a treasure beyond worth.
I may not always thank God for the troubles in my life but I DO thank Him for seeing past the rough exterior to the potential beneath. I believe that in His eyes, I am already a diamond, just waiting for my chance to shine..........

Wednesday, January 25, 2012

Another Anniversary....

Dearest Lydia,
One year ago today, we bundled you up and set out from the hospital for the first time with you nestled in the back seat. 


Three weeks as a guest of the Special Care Nursery.....three weeks of your brothers waiting to meet you officially, without a pesky piece of glass separating them from getting a good look at you....two weeks of being torn, spending my days settled in the recliner cuddling you and then driving home without you every evening. Two weeks of spending all day long thinking of what I needed to do at home when I was with you, and two weeks of thinking of nothing but you when I was home.
Over. FINALLY.
Home. A place you had never known in your three week old life, with plenty of brotherly love......



Overjoyed doesn't begin to describe what I was feeling. But I must admit that I was nervous too. More nervous than I remember being when I was a brand new mom, bringing Caleb home for the first time. Caleb didn't come with feeding tubes and apnea monitors. Caleb didn't come with a huge hole in his heart that would need surgery to repair. I didn't have to take infant CPR classes to bring him home or spend a whole night caring for him without the help of nurses before they would allow me to take him. With him, I was just hurled into the world of motherhood. With you, even though motherhood itself was old hat to me, I had to relearn everything I THOUGHT I knew.


Even with my nervousness about this new journey, you settled right in like this was where you had been all along. And that did more to set my mind at ease than any words or comfort could have....
I don't know quite how you did it, but you filled a hole in this family that we never knew existed. You seamlessly slid into our hearts, into our home, like you had been there all along. 
I have only known you for less than 13 months and yet...with every passing day, it gets harder and harder to remember the time before. 
Before sharing the bed with a 16 lbs queen bed hog. Before being the recipient of heart stopping smiles. Before seeing the sheer joy on your face when I come home after being gone for a while. Before slobbery kisses. Before seeing the pure pride in your eyes when you accomplish something you worked so very hard to learn. Before treasuring the scars on your chest. Before a tiny girl reached into my chest and stole my heart...........

Forever after will my life be divided into before and after. Because before you, I wasn't the me that I am now........I wasn't complete. I was just waiting for God to place you in my arms. :) 

I love you so much, my sweet miracle.


I just know that you are going to become more breathtaking with every year that passes......and I know that I, as well as everyone who knows you, will be more and more in love. More and more in awe that you belong here with us. 
Never forget to let your true colors show. They leave me without breath....


Ignite your light and let it shine.
Baby, you're my firework....
All of my love,
Mama