Who We Are- WDSD 2013

When we started this journey 2 and 1/2 years ago, we had no idea what to expect. Our firsthand knowledge about Down syndrome was limited at best and everywhere we turned, we heard more negatives than positives. We didn't reach out to the Ds community (in fact, I'm pretty sure that we had little idea that such a large community even existed!). We moved through the days remaining before Liddy's birth in a fog, never knowing that love and support was as close as reaching out through our computer screens.
2 years ago, on March 21st, 2011, everything changed for us. As I haltingly, hesitantly made my way through what seemed like thousands of posts, I cried a whole lot. And something more...those posts celebrating kids and adults who shared an extra chromosome with my Liddy showed me a whole new world existed that I never dreamed of. I opened my heart, my mind and my arms to a whole new family.
Over the last two years, I have grown to dearly love this worldwide family. There have been so many times that I don't know how I would have made it through that first year without them.We HAVE a support system, a loving family and truly amazing friends, yet somehow having friends who have walked in your shoes and have paved the way for you gives you courage and strength that you didn't know you had. The difference between those first bumbling steps into the Ds world to the confident strides we now walk with are in part largely due to these amazing ladies and gents who have shown us the way......

So who are we today? We are an average family who has faced what to some seem like extraordinary challenges. We are battle scarred, yet those scars add to our beauty, not detract away from it. We are stronger than we could have ever imagined we could be. We have faced the darkest days we could have dreamed of two and a half years ago and emerged into the light again, more confident, more faithful, more dedicated, more amazing than ever before. We have realized that the dreams we had for Liddy are still achievable, still within our grasp, and that she is perfectly capable of becoming whoever she sets her mind to be. We are more in love with our daughter, our sister, our grandchild, our niece, and our cousin than we could have ever believed was possible. We are inspired by her determination, her grace, and her inner beauty on a daily basis. This girl SHINES.

Who is Liddy? Well, that answer is a little more complicated. ;) She is a fanny shaking, finger snapping, car dancing angel. She is a sassy and sweet princess who never lets you forget for a single moment that SHE rules this household and has all of its occupants wrapped around her tiny crooked pinky. She is a little sister totally enraptured with her big brothers (and totally captivating to them as well). She is bubbly, and spunky, and stubborn. She is the very sunshine on a cloudy day. She is giggles and grins, pouty lips and crocodile tears. She is belly laughs and silliness. She is typical two year old attitude coupled with sweet baby loving. In essence, the light of our lives. :)
Happy World Down syndrome Day! Looking forward to a lifetime of celebrating the tiny package of dynamite we named Lydia Anne.

A Glimpse Two Years Later.....

I have slacked off on blogging badly over the last several months. It would be an adequate (and forgivable) excuse to claim that I simply don't have the time (or energy) to sit down at the keys of my computer and pour my soul out to the world at large nowadays but the real reason is that I find myself sitting here without the inspiration TO pour my soul out. Not that I fail to find inspiration daily in my daughter, or that I love her even a smidgeon less today than I did during all those nearly forgotten days of writing her love letters. Neither of those is true either. But it's funny. The very thing that inspired me to start this blog is the very reason I find myself without words now.

 2 years in and Down syndrome, while still a part of who my daughter is, is the least of who she is. Our lives don't center around that extra chromosome like they did in the beginning. It just is and our lives...well, they have settled into just normalcy. 

Without the constant stream of doctor's appointments and tests, without the constant worry about an upcoming open heart surgery, without the concern about what others think of her, we're just an average family with 2 active boys, a pregnant nursing student, and a crazy schedule chasing around a very normal two year old with a few developmental delays.  

 Its amazing to me looking back on those early days after just finding out that Liddy has Down syndrome how far we have come in so short a time. How far I have come, to be honest. There was a time not so long ago when I truly believed that nothing would ever be normal again. A time when all of my thoughts revolved around Down syndrome, when every time I looked at my daughter I searched for the signs of it written in the shape of her eyes, the bridge of her tiny nose, and her crinkle eyed smile. A time when I couldn't imagine how very proud of her I would be, how much she would inspire me, or how ridiculously smart she would be. Not so long ago, I was taken aback and struck speechless by the straggling few who looked at her and KNEW.

2 years later, I never see Down syndrome when I look at her. I just see my spunky, ornery, funny, intelligent, gorgeous daughter. My sweet Liddy. Take away that little extra chromosome? She wouldn't be the girl I love to distraction. She wouldn't be the bubbly girl who greets everyone with her cheery "hi". She wouldn't capture hearts with a flash of her heart stopping crinkle eye smile.Her orneriness wouldn't fill me with so much pride (haha it would just drive me crazy!). Her cuddly, pat you on the back hugs wouldn't be quite so treasured.

 Every day that passes I forget about Down syndrome just a little more and fall in love with the unique individual that is my child a whole LOT more.

I mean....seriously....how could I do anything less? 

So please forgive me if I lack the eloquence of my previous posts...or if my posts are few and far between nowadays. I'm chasing around a VERY inquisitive 2 year old....

...and frankly, just soaking up every minute of just being her mama. :)

Big Changes.....

 There are big things going on in our house.....

Liddy is very very close to walking. She's into everything. She talks our heads off....and knows around 50 signs. 

 She gets cuter by the minute, I swear. And she knows it.

I'm entering the second 8 week stretch of my second semester of nursing school. Which just means I am super busy...a little stressed...and ready for the summer off......

Although its looking like there won't be a whole lot of down time this summer...and no beach time. Instead, we're going to welcoming a new addition.....

Say WHAT???

Meet Levi John.....who will be making his arrival sometime in early to mid-July....

So far things are looking great. He's a rocker and roller already....and a big old boy. Pretty sure that the tiny Princess will be getting a run for her money here in a few months......and right now she has no idea. ;)

So here's to big things in our future......